Mattie is 974 days old!
And looking awesome I might add! Miracle!
We have spent 407 of those days in an intensive care unit.
I’m really happy to say that he has spent 556 of his days in our home, living life with family around him.
Mattie’s intensive care needs have involved ventilators, oxygen, Iv medications, surgeries, and life saving intervention. We’ve tried to make the sterile environment of the hospital reflect life at home. We cart in his clothing, his favorite toys, we hang pictures. We spend countless hours with him, holding him, telling stories, loving on him.
Yesterday I wrote about the balance of caring for our marriage, loving each of our children and giving them our time, even in crisis mode. It is intensive care of a different type.
Care givers need intensive care too.
I need intensive care.
I learned early on the importance oft asking care for me.
If I’m going to be good for anyone, I need to take care of me.
My Intensive Care Rules for Myself are….
1. Don’t forget to breathe.
2. Eat regularly.
3. Drink a lot of water.
4. Step away from the bedside for sunshine, even if it’s only 5-10 minutes.
5. Sleep at home except in crisis.
6. Indulge in pampering whenever possible. (Massage, pedicure, etc)
Getting sunshine with Elia today during our all day visit with Mattie.
Grateful for beautiful, quiet spots like this one at our children’s hospital.
If you’re in the thick of it with a child needing intensive care, I give you permission (no, I implore you) to take care of YOU!