The past few days we have seen a stead increase in the level of fluid retention in Mattie’s body. The typical treatment of giving diuretics has had not lessened the edema that Mattie is struggling with. Since last Saturday, he has gained 2 lbs, the majority of that due to fluid build up in his body. The past two days we have been discussing the various possibilities for why this is happening, and so far have gotten a lot of answers to what it is not, but not anything clear on what is causing it.
The normal labs have been done, ultrasound has been done of his neck and face (where the worst of the swelling has settled). We have eliminated infection. There is no fever and no lab work indicates signs of infections. There is no clot or tumor in his neck (yes this was a consideration). His heart is functioning as well as it should be given the defect and is not causing the fluid build up.
Tomorrow they have called a Hematology consult and we will be getting another set of labs based on Hemotolgy’s request. They will be looking at several disorders involving the lymphatic system, as well as the possibility of leukemia. As you can imagine this has been a very difficult day, and we would appreciate your prayers.
John and I were able to spend the majority of the day with Mattie, and John is actually headed back down to the hospital now. We prayed over him and spoke the truth about the miracle and beauty of his life. We told him that he is fearfully and wonderfully made, wanted and loved, and that God has an incredible plan for his life.
At one point I felt impressed to read Psalm 91 over him. I personalized it for him and we prayed it over him.
We would like to ask that you join us as often as you can over the next 24 hours, specifically praying Psalm 91 over our sweet boy. If you can commit even to doing this once or twice, we would be so grateful. We hope to have some miraculous answers to pray by the end of the day tomorrow. Please pray and believe with us.
Mattie dwells in the shelter of the Most High, and he will rest in the shadow of the Almighty.
Mattie will say of the LORD, “He is my refuge and my fortress, my God, in whom I trust.”
Surely he will save Mattie from the fowler’s snare and from the deadly pestilence.
He will cover Mattie with his feathers, and under his wings Mattie will find refuge; His faithfulness will be Mattie’s shield and rampart.
Mattie will not fear the terror of night, nor the arrow that flies by day,
Nor the pestilence that stalks in the darkness, nor the plague that destroys at midday.
A thousand may fall at Mattie’s side, ten thousand at his right hand, but it will not come near Mattie.
Mattie will only observe with his eyes and see the punishment of the wicked.
Mattie has made the Most High his dwelling— even the LORD, who is Mattie’s refuge—
Then no harm will befall him, no disaster will come near Mattie’s tent.
For He will command His angels concerning Mattie to guard him in all his ways;
They will lift Mattie up in their hands, so that he will not strike his foot against a stone.
Mattie will tread upon the lion and the cobra; Mattie will trample the great lion and the serpent.
“Because Mattie loves me,” says the LORD, “I will rescue him; I will protect Mattie, for he acknowledges my name.
Mattie will call upon me, and I will answer him; I will be with Mattie in trouble, I will deliver Mattie and honor him.
With long life will I satisfy Mattie and show him my salvation.”
Psalm 91 (A Momma’s Paraphrase for her son)