Well, our boy remains a mystery. Not a good thing when you’re parents wanting answers for what’s up with your little honey boy. Mattie’s bronchoscopy really didn’t reveal anything significant enough to warrant the issues he is having. He did have some inflammation of the airway, but not severe. His breathing “spells” which involve a little gag/choke episode followed by a drop in his oxygen saturation, and obvious struggle in breathing, have increased.
Today an upper GI was done to see if there is a possibility that in spite of his fundoplication (stomach surgery), he may be refluxing still. The upper GI, did not reveal that, however it is still not out of the question that this is happening. It also appears that the fundoplication is still in tact and hasn’t loosened or come undone.
Leaving us with no real explanation at this point. We have a care conference scheduled with all of Mattie’s specialists on Monday, so that we can get everyone around a table and discuss this and come up with a plan. Mattie will also have a swallow study done on Monday.
We would appreciate continued prayers and really really hope that this coming week brings some answers and a plan for Mattie’s care.