Roller Coaster

What a roller coaster the past three months have been! Mattie will be 3 months old in just one more week. Never would we have ever imagined that he’d still be in the hospital. This has been a season of leaning on Jesus like no other. When I look into the eyes of this precious boy, I am reminded every time of how precious and treasured his life is. I am reminded daily of the lengths the Father went to in order for his life to be spared, and I am so grateful.

This little boy is the light of  our lives. He has brought us more joy than we can ever convey. We are so honored that the Father chose us to be his parents.

Mattie had a fever last week that caused some pretty serious breathing complications. He had to be bumped up to the highest level of oxygen support that can be given on a nasal canula and was very close to being intubated again. He is currently receiving breathing treatments to keep his lungs open and clear, and they are working to evaluate whether he actually has some structural issues with his airway that are common with children who have Down syndrome. He will be having a bronchoscope sometime soon to get a clearer picture of his lower airway. They did scope his upper airway yesterday and it is definitely weak. They suspect he has Brochomalacia.

We would appreciate prayers for healing of Mattie’s airway. They unit is now shut down for any visitors under the age of 18 due to flu and RSV season. So Sunday, Taylor and Isabelle came up to get one more snuggle in with their brother.

I adore this picture. In spite of the fact that we have yet to be all together under one roof, Mattie is deeply knit into the fabric of our family.

Please continue to pray for strength to every member of our family as we walk this out together, and for our sweet Mattie boy to be healed.


7 thoughts on “Roller Coaster

  1. That is one of the most precious photos I have ever seen.
    You are in the prayers of so many ~ especially the intercession of Jesus Christ himself.
    God bless you and your beautiful family.

  2. There’s so much in my heart that words just don’t work to express it all. You know you’re in our prayers and our hearts.

  3. I recognize those jammies! When our sons are big we can tell them they shared clothes. I’m excited to meet your Mattie boy, who’s living life, which is a wonderful thing. 🙂

  4. Definitely continuing prayers!!!! Love to you all….knowing this is really hard when one family member is not home with you. PRAYING for healing and that soon……you will all be home!

  5. Oh, the way he’s looking at Taylor is absolutely tear worthy!! And I’m sure Taylor is looking just as starry eyed right back at him!

  6. Tracie,
    I know you don’t know me. It a complete GOD THING. I want you to know that I have been praying for your more-beautiful-than-words-can-describe son. I wept late into the night last night as I prayed and pictured our Heavenly Father holding Mattie in His Hands. I pray that you will feel that His mercies are new every morning!

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